The Chair Presents Research on the European Health Data Space at IPoP Plenary 2026 (Paris, Fr)

On October 7, 2026, the Chair was invited to participate in IPoP Plenary 2026, where Pankaj Raj, Research Engineer at the Chair, presented our ongoing research on the European Health Data Space (EHDS), focusing on the regulatory framework for the secondary use of electronic health data.

The presentation explored a key transparency requirement under the EHDS: the obligation to make the results or outputs of secondary use of health data publicly available. Under the EHDS, health data may be accessed and processed for various permitted purposes, including scientific research and the development, training, and evaluation of artificial intelligence (AI) systems.

This raises an important question: What constitutes a publicly disclosable result when health data is used to train and test AI models?

Although the EHDS requires published results to contain only anonymous data, determining the boundaries of public disclosure in the context of AI development presents significant legal and technical challenges. AI models and their outputs may reveal sensitive information, while certain aspects of their development may involve commercially confidential information or trade secrets.

The presentation highlighted several questions at the intersection of transparency, privacy, and innovation:

• What information resulting from AI training and testing should be made publicly available under the EHDS?
• Where should the boundary lie between transparency obligations and the protection of sensitive information?
• What information would AI developers be willing to disclose publicly, and what might they disclose only under specific conditions?
• Which aspects of AI development should be protected as commercially confidential information or trade secrets?

These questions form part of the Chair’s broader research into the legal and technical challenges of implementing the EHDS, particularly the need to balance transparency, data protection, and commercial interests in the secondary use of health data.

About the IPoP Project

The Interdisciplinary Project on Privacy (IPoP) aims to investigate privacy threats arising from emerging technologies and digital services. The project seeks to develop approaches that protect individuals’ privacy while ensuring compliance with European regulations and preserving the quality of the user experience.

The Chair’s participation in IPoP Plenary 2026 provided a valuable opportunity to share its ongoing research and contribute to discussions on the future of responsible health data use and AI innovation in Europe.